Mona

"My wife, Nancy, and I have been caring for my sister, Mona, since 1995. Mona is 73-years-old and her physical and mental capacities are deteriorating. She is increasingly unsteady on her feet, has difficulty understanding directions and is hard of hearing."

Claude

 

"I am 78-years-old and Nancy is 72. Our stress level is increasing because of the responsibility of taking care of Mona. Both Nancy and I are in therapy for stress and depression."

Claude

 

“We prepare her meals, wash her clothes, manage her medications and coordinate all her medical appointments. One of the most frustrating requirements is finding care so Nancy and I can go out for an evening. There is no opportunity for extended trips.”

Nancy and Claude

 

  Mona attends an adult day care during the week from 10:00 am to 3:00 pm. Claude and Nancy provide transportation.  

 

Mona attends an adult day care during the week from 10:00 am to 3:00 pm. Claude and Nancy provide transportation.

 

  “We are grateful that we have been able to care for Mona for so many years but we don’t know how much longer we can appropriately care for her. Nancy and I both have cardiac problems and we cannot find the time to consistently attend our cardiac rehabilitation program that has been prescribed by our cardiologists. At our age, issues such as high blood pressure, diabetes and falls have become a reality.” Claude and Nancy  

 

“We are grateful that we have been able to care for Mona for so many years but we don’t know how much longer we can appropriately care for her. Nancy and I both have cardiac problems and we cannot find the time to consistently attend our cardiac rehabilitation program that has been prescribed by our cardiologists. At our age, issues such as high blood pressure, diabetes and falls have become a reality.”

Claude and Nancy

 

  “Mona is on the waiting list for the Medicaid Waiver. Our responsibility to care for Mona has reached a critical stage. Nancy and I want to get Mona secured in an appropriate residential setting while we still have control of the process and before our health has been even more seriously compromised. We want to be involved in the selection of the residential setting and active in monitoring and supporting Mona’s participation in the residential experience. Leaving these decisions to people who don’t know Mona and her needs for caring support will be irresponsible at best. The greatest impact on us when Mona is allocated a Medicaid Waiver will be the return of a quality of life that has been missing for so long. Quality of life would be a very nice thing to have in the years we have left.” Claude and Nancy

 

“Mona is on the waiting list for the Medicaid Waiver. Our responsibility to care for Mona has reached a critical stage. Nancy and I want to get Mona secured in an appropriate residential setting while we still have control of the process and before our health has been even more seriously compromised. We want to be involved in the selection of the residential setting and active in monitoring and supporting Mona’s participation in the residential experience. Leaving these decisions to people who don’t know Mona and her needs for caring support will be irresponsible at best. The greatest impact on us when Mona is allocated a Medicaid Waiver will be the return of a quality of life that has been missing for so long. Quality of life would be a very nice thing to have in the years we have left.”

Claude and Nancy